Help Us Preserve Access to Speech-Generating Devices for People with ALS
the ability to speak is one of the most devastating aspects of the ALS disease
progression. It isolates people with ALS from their families and friends,
robbing the person living with ALS of the ability to communicate and stay
why it’s so hard to imagine that recent changes to Medicare and Medicaid have
limited or denied people with ALS the right to speech generating and eye
You Can Help – Send a Tweet or Email to Your Members of Congress Now!
Your Support Boosts Work of Promising Young Scientist
Tune in to a podcast produced by The ALS Association Greater Philadelphia Chapter to get to know one of the most promising up and coming scientists in ALS research today. With generous support from people like you, Jill Yersak, Ph.D., is taking her work beyond the laboratory to bring hope and comfort to people with ALS. After you check out her podcast about ALS research, click here to read what inspiring new information we learned from Dr. Yersak in a follow-up interview.
Research Update Webinar
Topic: Clinical Trial of Ezogabine (Retigabine) on Motor Neuron Excitability in ALS Speaker: Dr. Brian Wainger, Massachusetts General Hospital Date: April 16, 2015
Time: 1:30 p.m. ET
Care Services Webinar
Topic: Accessing Information through Social Media Date: April 20, 2015 Time: 2 p.m. ET
Hope & Progress
Ice Bucket Challenge to Shorten the Distance to Clinical Care Centers for Those Living in Rural Nebraska
Every few months, Ms. Kathy Colburn makes the long five-hour trek to the
nearest ALS Association Certified Center where she receives the
specialized care she needs to help manage her disease. It’s a long
journey and one that Kathy cannot make without the assistance of family
Yet, Kathy considers herself one of the lucky ones. For some in her
home state of Nebraska, the clinic located on the Iowa border is just
too far and costly of a distance to reach.
There is hope for Kathy and others living with ALS.
Numotion Teams Up with the ALS Association
In recognition of National Occupational Therapy Month in April, Numotion would like to thank occupational therapists for their valuable contributions to help bring mobility and independence to the ALS Community.
Numotion, a leading provider of Complex Rehab Technology (CRT), including customized wheelchairs, is proud to support The ALS Association and is excited to continue as a National Premiere Sponsor. In 2014, their Walk to Defeat ALS(R) teams raised over $165k, and they look forward to strengthening their partnership in 2015.
Power Seat Elevators for Clients with ALS
power seat elevator allows individuals to raise and lower the seat
height through the wheelchair electronics. This can help to increase
vertical reach, improve transfers, and promote independence with daily
activities. Individuals with ALS can find it increasingly difficult to
come to a standing position from a low sitting surface. With the seat in
an elevated position, less energy, strength, and assistance may be
needed to come to the standing position, which prolongs independence and
increases safety. Improving vertical reach becomes extremely important
to the individual with ALS who may have difficulty reaching for items
above the level of their shoulders. With a higher seat height, items on
countertops or in medicine cabinets can be more easily reached. In
addition, power seat elevation allows individuals to have eye contact
with other and reduces the risk of cervical strain and pain, including
headaches from poor positioning and looking upwards. Vertical rise also
provides psycho-social benefits of being on peer level and speaking
eye-to-eye. To learn more about power seat elevators, visit www.permobil.com.
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Express is a companion to The ALS Association's national publication, Vision Magazine.
Our Winter 2015 issue is now available.
The ALS Association
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Washington, DC 20005