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The ALS Association

Fighting Lou Gehrig's Disease

February 2015

Share the Love this Valentine's Day

 

Dear Member,


It's that special time of the year to let all the important people in your life know how much they mean to you. February 14 can also provide the perfect chance to celebrate the lives of those fighting ALS.

Please take this opportunity to tell your loved ones how much they mean to you. Help spread compassion and ALS awareness by sending a special Valentine's Day eCard to your family and friends.

 

In This Issue

Featured Stories
Advocacy & Public Policy
Research Updates
Upcoming Webinars
How You Can Help

valentine's day card graphicAs always, we are so grateful for your support! I wish you and your family a special and heartwarming Valentine's Day.

 


Barbara NewhouseVery best regards,

Barbara Newhouse signature

 

Barbara Newhouse
President & CEO

 
Featured Story
 
 
BAYADA Home Health Care Helps People With ALS
 

As a proud partner of The ALS Association, BAYADA Home Health Care is honored to help people with ALS live safely at home with comfort, independence, and dignity until there is a cure. We offer a wide range of services for ALS families, including nursing, rehabilitative, therapeutic, hospice, and assistive (personal) care.

Our commitment to clinical excellence inspired the development of a unique and proprietary seven-part ALS training program to provide specialized expertise to our home health aides and nurses who care for people with ALS.  BAYADA is proud to be among the few providers that train caregivers to meet the specific and individual needs of people living with ALS. Our specialized trainings will begin in early 2015 and continue throughout the year.

BAYADA is a trusted leader in providing clinical care and support services at home. We believe that our clients come first and our employees are our greatest asset because they are the heart of home care. To learn more about how we can support you and your family with the challenges of ALS, visit www.bayada.com/ALS or call 888-4-BAYADA, or 888-422-9232.

 
Advocacy & Public Policy
 
 
The ALS Association Endorses Legislation to Preserve Access to Speech Generating Devices and Eye Tracking Technology
 
connections-nov2014-advocacy.jpgThe ALS Association endorsed the Steve Gleason Act, introduced in the Senate by U.S. Senator David Vitter (R-LA) and to be introduced in the House by U.S. Representative Cathy McMorris Rodgers (R-WA), that would help preserve access to speech generating devices (SGDs) and related eye tracking technology.
 
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Research Updates
 
 
Letter to the ALS Community

We are excited and enthusiastic about the new approaches and new drugs that are being tested for people with ALS and remain very hopeful that one or more of these will become a therapy with substantial impact on slowing down or perhaps even stopping ALS. We remain grateful to the brave volunteers with ALS who are willing to take new medications to help in the battle to find an effective therapy. We understand the urgency to find treatments for a disease that has such a rapid course and are committed to identifying promising treatments more rapidly through initiatives to improve clinical trial design and encourage the testing of many compounds in phase II studies. Read more.


ALS Association-Supported Study Shows Parkinson’s Disease Gene Targets Brain Motor Neurons

Loss of a gene linked to Parkinson’s disease (PD) exposes motor neurons in the brain to increased stress and leads to neurodegeneration, according to a study supported by The ALS Association.  Mutations in the gene, called UCHL1, were first identified as a rare cause of PD and more recently in a non-PD syndrome characterized by loss of upper motor neurons. Upper motor neurons, which link the brain and spinal cord, are also lost in ALS. Learn more about UCHL1.


 
Call for Research Proposal: Drug Development Contract

As part of it's TREAT ALS™ program, The Association is requesting letters of intent for its drug development contract program, milestone driven research to develop new treatments for ALS. The program compliments the Department of Defense ALS research program and the translational programs at the National Institutes of Health. Read more.

 
Upcoming Webinars
 
 
Research Update Webinar

Topic: Induced Pluripotent Stem Cells to Model and Treat ALS:
A New ALS Association Funded Core Facility at Cedars-Sinai
Speaker:
Clive Svendsen, Ph.D., Cedars-Sinai Medical Center
Date: February 10, 2015
Time: 4 p.m. ET

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Care Services Webinar

Topic: Rapid Access Communication Tools
Date: February 23, 2015
Time: 2 p.m. ET

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What You Can Do To Help
 
 
Remembering Loved Ones & Fighting ALS - Using the Right Words
 
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If providing compassionate care to people living with ALS, funding research for treatments and a cure and advancing public policy are important to you, we invite you to consider a bequest through your will or living trust to The ALS Association.
 
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VISION Express is a companion to The ALS Association's national publication, Vision Magazine. Our Winter 2015 issue is now available.

The ALS Association
1275 K Street NW, Suite 250
Washington, DC 20005
202.407.8580 | www.alsa.org

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