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The ALS Association

Fighting Lou Gehrig's Disease

December 2014

Catch the Spirit of the Giving Season

 

Dear Member,

 

After spending Thanksgiving reflecting on our blessings, many of us choose to express our gratitude by giving back to others. As the giving season moves into full swing, join us in the spirit by supporting research, care, and hope for people living with ALS.

The Ice Bucket Challenge, which took the world by storm this past summer, increased awareness of ALS and raised more than $115 million in support of The ALS Association. Whether they braved the ice or not, millions of people from around the globe gave generously in support of our vision to create a world without ALS. On behalf of the Association, I thank everyone who donated this year.

 

In This Issue

Featured Stories
Advocacy & Public Policy
Research Updates
Upcoming Webinars
How You Can Help
 

That outpouring of support has enabled The ALS Association to triple our spending on research, including an initial expenditure of $21.7 million approved in October to support six initiatives designed to expedite the search for treatments and a cure.

Your support of our mission is critical. Please make a tax-deductible donation to The ALS Association this holiday season. Your support will fund the most collaborative, cutting-edge scientific research in the world, care services for people living with ALS in our community and advocacy programs focused on achieving federal and state support for ALS research and care.

Thank you for your generosity and support. Happy Holidays from everyone at The ALS Association!​


Barbara NewhouseVery best regards,

Barbara Newhouse signature

 

Barbara Newhouse
President & CEO

 
Featured Story
 
 
Thanks for all your support this year
 
Thank you

 

Never before have so many people embraced the fight against ALS.  Because of you, we can help more people with ALS, their caregivers and families. View a special 'Thank you' video and learn more about how your support to The ALS Association can lead to a cure.
 
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Advocacy & Public Policy
 
 
Help Ensure Access to Speech Generating Devices
 
connections-nov2014-advocacy.jpgWe need your help TODAY to ensure people with ALS continue to have access to speech generating devices (SGDs). Medicare will accept input through December 6. Please use the sample language and instructions on our website to contact the Centers for Medicare and Medicaid Services - let them know that Medicare must ensure access to SGDs!
 
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Research Updates
 
 
Upcoming Deadlines for two funding opportunities
 
Call for AbstractsThe ALS Association has announced a Call for Abstracts for its Investigator Initiated Research and Clinical Development programs. Forms are due in January 2015. Get full details for these two calls.

 
Report from the Society for Neuroscience Meeting

Data, and lots of it, is increasingly seen as critical to finding new treatments for ALS. Data from genes, from tissue samples, and from clinic visits—all of it may hold important clues to what causes amyotrophic lateral sclerosis (ALS), how it progresses, and what determines the onset and development of the disease.

The ALS Association booth at this year’s Society for Neuroscience conference in Washington, D.C. Understanding how best to use and share the emerging mountain of ALS data was the theme of The ALS Association-sponsored Advances in ALS and FTD (frontotemporal dementia) Genetics Workshop, held recently in Washington, DC, in conjunction with the annual meeting of the Society for Neuroscience, the largest gathering of neuroscientists in the world. Read more about this exciting event.

 
Upcoming Webinars
 
 
Care Services Webinar
 
Topic: Using Technology to Create a Family Keepsake
Date: December 15, 2014
Time: 2 p.m. ET
Session number: 826 096 722
Session password: ATdec2014
 
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Research Update Webinar
 

Topic: Research Opportunities as a Result of Ice Bucket Challenge Funds
Speaker:
Lucie Bruijn, M.B.A., Ph.D., Chief Scientist, The ALS Association
Date: December 9, 2014
Time: 4 p.m. ET

 
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What You Can Do To Help
 
 
Year-End Charitable Giving
 
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As the year end approaches, please consider a charitable gift to support The ALS Association. Here are a few giving opportunities to consider.
 
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VISION Express is a companion to The ALS Association's national publication, Vision Magazine.

The ALS Association
1275 K Street NW, Suite 250
Washington, DC 20005
202.407.8580 | www.alsa.org

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