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The ALS Association

Fighting Lou Gehrig's Disease

November 2014

It’s National Family Caregiver Month

 

Dear Member,

 

In recognition of the vitally important work of family caregivers, this month The ALS Association puts the spotlight on the millions of people in the United States who fill this role each year. These are the family and friends on the front lines, often handling direct care, health services coordination, doctor visits, household management and much more for loved ones who would otherwise be without crucial support.

 

In This Issue

Featured Stories
Advocacy & Public Policy
Research Updates
Upcoming Webinars
How You Can Help
 

BayadaCaregivers encounter many challenges in dealing with ALS, some of which include the new experience of providing assistance to those developing physical limitations affecting mobility, swallowing, speaking and breathing. An ALS diagnosis impacts every aspect of caregivers' lives as they adjust their efforts to meet ongoing work, family, personal and financial obligations, which change as this disease progresses.

To support caregivers, we offer helpful resources on our website. Additionally, this month there will be an ALS Association-hosted webinar on November 17 about the benefits of professional home health care.

We will also offer individuals the opportunity to thank a caregiver through an online e-card. People can create customized messages to send via email to the caregiver in their lives who has chosen to fill this vital role. For each e-card sent, Permobil, the world's leading manufacturer of power wheelchairs, will donate $100 with a $25,000 maximum donation.

So please join us this month in celebrating those who are dedicated to caring for people living with this disease.

Thank you for all you do for those with ALS!


Barbara NewhouseVery best regards,

Barbara Newhouse signature

 

Barbara Newhouse
President & CEO

 
Featured Story
 
 
Flu Season and You
 
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It's that time of year again! As we welcome a change of season, an unwanted guest lurks in every community - the influenza virus. People living with ALS, as well as their loved ones and caregivers, should consider getting the flu shot.

However, it is important to talk with your physician to see if you might be a good candidate to receive this vaccination.
 
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Advocacy & Public Policy
 
 
Fight for Those Who Have Fought for Us
 
connections-nov2014-advocacy.jpgVeterans Day is Tuesday, November 11, and The ALS Association once again is launching a letter-to-the-editor campaign to raise awareness of our cause and the impact ALS has on our military heroes.
 
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Research Updates
 
 
The ALS Association Triples Spending on Research
Thanks to Ice Bucket Donations
The ALS Association has announced that the Board of Trustees has met and developed a long-term strategy for leveraging the Ice Bucket Challenge donations it has received to advance its integrated mission of leading the fight to treat and cure ALS through global research, care services and public policy. Read the full statement.
 
New ALS Gene Supports Role for
Neuron Transport Defects in Disease
In ALS Association-supported work published in the journal Neuron, researchers have announced the discovery of a new gene for ALS, which further implicates defects in the cellular transport system as a cause of the disease. Read more about this new discovery.
 
 
Upcoming Webinars
 
 
Care Services Webinar
 
Topic: The Benefits of Professional Home Health Care
Speaker: BAYADA Home Health Care Professionals
Date: November 17, 2014
Time: 2 p.m. ET
Session number: 824 443 052
Session password: ATCnov2014
 
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Research Update Webinar
 

Topic: Exome-Wide Rare Variant Analysis Identifies a Novel Gene Associated with Familial ALS
Speaker:
John Landers, Ph.D., Professor, University of Massachusetts Medical School
Date: November 12, 2014
Time: 4 p.m. ET

 
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What You Can Do To Help
 
 
Retire with Meaning - Help Your Kids & Fight ALS Too
 
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Since you first started working, you’ve been regularly reminded of the importance of saving for retirement. Now you may find that your retirement savings are more than adequate. In addition, retirement assets are one of the most heavily taxed assets we own. Without proper planning, retirement assets may be subject to both estate and income taxes at your death.
 
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Make Twice the Impact with Your Gift
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If your company has an employee matching gift program, you could double the impact of your gift to The ALS Association.

Check with your human resources or community relations department and ask for the proper form to request that your company match your gift. Some companies match gifts made by retirees and/or spouses.
 
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VISION Express is a companion to The ALS Association's national publication, Vision Magazine.

The ALS Association
1275 K Street NW, Suite 250
Washington, DC 20005
202.407.8580 | www.alsa.org

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