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The ALS Association

Fighting Lou Gehrig's Disease

May 2014

Honoring Lou Gehrig's Legacy

 

Dear Member,

 
Seventy-five years ago, on July 4, 1939, Lou Gehrig delivered what is now known as sports’ most famous speech. Suffering from the symptoms of ALS, he died less than two years later at the age of 37. Today, Gehrig remains an inspiration, representing fortitude, humility and courage to the tens of thousands of Americans living with Lou Gehrig’s Disease.

In This Issue

Featured Story
Advocacy & Public Policy
Research Updates
Upcoming Webinars
How You Can Help
During this special anniversary year, beginning yesterday with the start of ALS Awareness Month, and culminating in July, The ALS Association will be honoring Gehrig’s legacy in a nationwide campaign to raise money for cutting-edge research to find treatments and a cure for the cruel disease that now bears his name. To learn more about Gehrig and the state of ALS research visit www.ALSA.org/75.

While Gehrig was the first face of ALS, this ALS Awareness Month The Association wants to not only honor his legacy but also recognize the thousands of individuals that are currently impacted by the disease. Raising awareness is a crucial step in generating support for our efforts of finding treatments and a cure for today’s faces of ALS.

Visitors to www.ALSA.org/75 can learn more about Lou Gehrig, ALS and the latest groundbreaking research. They can also read stories of those impacted by the disease or make a donation to support research projects led by the world’s top ALS scientists.

We encourage you to share stories of people impacted the disease via social media. Public service announcements (PSAs), web banners, infographics and social media assets (Facebook/Twitter/YouTube profile pictures and cover photos) are also available for download.

Thank you for your support during ALS Awareness Month and helping to raise awareness not only of Lou Gehrig’s legacy, but also of the disease that bears his name.
 
Sincerely,
 
 
Jane H. Gilbert
President & CEO
 
Featured Story
 
 
VA Expedites Access to Housing Grants for Veterans with ALS
 
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The Department of Veterans Affairs recently announced that veterans with ALS and those on active duty automatically are eligible for Specially Adaptive Housing (SAH) Grants. The grants provide veterans with up to $68,000 to adapt their homes.
 
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Advocacy & Public Policy
 
 
2014 Advocacy Day: Participate From Anywhere
 
The 2014 Advocacy Day and Public Policy Conference is only one week away! For those of you who are coming to Washington, D.C. we hope you are as excited as we are! If you are unable to attend the Public Policy Conference in-person, there are plenty of ways you can still participate, such as through our Virtual Advocacy Day, following us on Twitter, or viewing the live video of some sessions. 
 
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Research Updates
 
 
Research ALS Today Magazine Now Available!
 
RATThe Spring issue of Research ALS Today is available. Read about research into yeast cells, get updates from scientific journals, and more. Click here to view or download.
 
U.S. Food and Drug Administration Approves Start of BrainStorm Stem Cell Trial for People with ALS
 
On April 27, the Israel-based BrainStorm Cell Therapeutics said the U.S. Food and Drug Administration (FDA) has approved the start of a mid-stage clinical trial of its adult stem cell treatment for people with ALS. Read the full article.
 
Update on Cytokinetics BENEFIT-ALS
 
Cytokinetics, Incorporated announced exciting additional results from its BENEFIT-ALS (Blinded Evaluation of Neuromuscular Effects and Functional Improvement with Tirasemtiv in ALS), during the 66th Annual Meeting of the American Academy of Neurology (AAN) conference this week. Read the press release from Cytokinetics.
 
2014 Sheila Essey Award Recipient Announced
 
This year’s Sheila Essey Award for ALS Research recipient is Jeremy Shefner, M.D., Ph.D. Dr. Shefner has served as a principal investigator for numerous ALS trials, and his leadership in clinical research has been instrumental in accelerating the pace and improving the quality of clinical trials for the disease. Read the full article.
 
Upcoming Webinars
 
 
Care Services Webinar
 
Environmental controlsTopic: Environmental Controls for
Daily Living for People with ALS    

Date: Monday, May 19, 2014
Time: 2 p.m. ET
Session number: 820 572 115
 
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RESEARCH UPDATE Webinar
 
Topic: A Pilot Clinical Trial of mGluR5 Brain PET Imaging in ALS – a potential biomarker to assist in diagnosis and monitoring disease progression
Speaker: Lyle W. Ostrow, M.D., Ph.D., Johns Hopkins School of Medicine
Date: May 20, 2014
Time: 4 p.m. ET
 
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What You Can Do To Help
 
 
Leaving a Legacy - Making Your Mark with a Bequest
 
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Including The ALS Association in your will is one of the simplest ways to leave a lasting legacy. When you give a gift through a bequest, you continue to enjoy the use of your assets during your lifetime, and there is no immediate cost to you.
 
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Celebrating Mom This Mother’s Day
 
Promise Fund

 

"We honor her not because she had ALS, but because she was much more to us," wrote Cheri Kopp, who chose to celebrate her Mom, by establishing an ALS Promise Fund. Every Promise Fund story is unique, but each captures the triumph of the human spirit.
 
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VISION Express is a companion to The ALS Association's national publication, Vision Magazine.

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202.407.8580 | www.alsa.org

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