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The ALS Association

Fighting Lou Gehrig's Disease

February 2014

Send a message of Love and Compassion

 

Dear Member,

 
Valentine's Day is that special time of the year to tell family members, caregivers and those with ALS how much they mean to you. Although we shouldn't need a reason to hold each other tighter, it is nice to have an entire day devoted to those that we care so much about. The impact of an ALS diagnosis has a rippling effect:  everything changes, and this often affects familial roles and relationships. To help, this month's spotlight is on
making connections through technology.

In This Issue

 
Featured Story
Advocacy & Public Policy
Research Updates
Upcoming Webinars
How You Can Help
 
Also, we have created a special Valentine's Day eCard to help you spread the compassion, love and ALS awareness. Please take this opportunity to tell your family and friends how much they mean to you. Click the eCard button to get started.

We are so grateful for your support. I wish you and your family a wonderful Valentine's Day.

 
Sincerely,
 
 
Jane H. Gilbert
President & CEO
 
Featured Story
 
 
Making Connections Through Technology
 
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As a by-product of ALS, many people are more socially isolated. Even those who cannot speak find connecting through texting, emailing, or social media an excellent way to share their thoughts.
 
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Advocacy & Public Policy
 
 
advocacy day Registration NOW open
 
Early bird registration is now available for the 2014 ALS Advocacy Day and Public Policy Conference.  The event will be held May 7 - May 9, 2014 at the JW Marriott in Washington, D.C. 
 
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Research Updates
 
 
Gene Mutation Involved in Lou Gehrig’s Disease
Disrupts Critical Neuronal Transport Process
 
In ALS Association-supported work published in the journal Neuron, researchers have shown that the ALS-associated protein TDP-43 is critical for transport within neurons.

Virtually all people with ALS have abnormal aggregates of protein in their dying motor neurons that contain TDP-43 protein. It is unknown how or whether these aggregates contribute to the disease. Mutations in the TDP-43 gene also cause a small number of ALS cases and how the mutation causes disease is also unknown. Read the full article.
 
New Grants Announced
 
The ALS Association is pleased to announce the awarding of five new grants to investigate the causes and treatment of ALS. The ALS Association identified the focus of each of these grants as
areas with high potential for progress.

“Through our TREAT ALS™ Portfolio, we are able to accelerate research in the most promising areas across the spectrum of ALS,” said Lucie Bruijn, Ph.D., Chief Scientist for The ALS Association. Click here for more details.
 
 
Upcoming Webinars
 
 
Care Services Webinar
 
Topic: Google Glass, the Future of Assistive Technology                                                                      
Date: Monday, February 24, 2014
Time: 2 p.m. ET
Session number: 821 789 230
Session password: ATcallfeb2014
 
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RESEARCH UPDATE Webinar
 
Topic: Overview of ALS Research
Speaker: Lucie Bruijn, Ph.D.
Date: Monday, February 24, 2014
Time: 4 p.m. ET
 
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What You Can Do To Help
 
 
Remembering Loved Ones & Fighting ALS - Using the Right Words
 
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If providing compassionate care to people living with ALS, funding research for treatments and a cure and advancing public policy are important to you, we invite you to consider a bequest through your will or living trust to The ALS Association. Below is language you can provide to your financial adviser for including The ALS Association in your will or living trust.
 
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Join the Community of Hope Today
 
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This Valentine’s Day, create a lasting legacy in honor of your loved one’s fight against ALS by establishing an online tribute fund!The newly re-designed Community of Hope website allows you to:
  • Upload the story of your ALS connection, including photos and video
  • Raise ALS awareness using email, social media, and your own Community of Hope blog
  • Set a fundraising goal and invite family and friends to contribute in honor of someone special
 The dollars you raise through Community of Hope are critical to patient and family services, nationwide public policy efforts, and ultimately, the discovery of a cure.
 
Check out the new Community of Hope website and establish your tribute fund today.

 

 

 

 
 
VISION Express is a companion to The ALS Association's national publication, Vision Magazine.

The ALS Association
1275 K Street NW, Suite 250
Washington, DC 20005
202.407.8580 | www.alsa.org

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