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The ALS Association
Vision Express

 

 
 
  01. Letter from the President
  02. Advocacy & Public Policy
  03. Research Update
  04. How You Can Help

 

 
 
 

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Letter from the President

Nearly 74 years ago, Major League Baseball Hall of Fame legend Lou Gehrig stood before his legions of fans at Yankee Stadium and declared himself the luckiest man alive. His public battle with the disease that now bears his name was thrust into the national spotlight for the first time that day.

During the month of July, The ALS Association is teaming up with Major League Baseball for the 4♦ALS Awareness initiative, a campaign to rally support in the fight against Lou Gehrig's Disease. Baseball clubs across the country are uniting throughout the season to bring public attention to ALS.

Want to join the team? Participate in the Covering All the Bases Hitting Challenge and make a pledge that will support our care services programs, cutting-edge research, and advance public policy efforts on Capitol Hill.

One of our loyal and passionate supporters has stepped up to the plate by matching any new contributions to Covering All the Bases up to $25,000. By joining the team, your gift will have double the impact on the services and programs provided by The ALS Association.

Every "hit" brings us closer to a treatment and cure for Lou Gehrig's Disease. Thank you for your continued support!

Sincerely,

9-28-10 Match Email 2 Signature

Jane H. Gilbert
President & CEO

Advocacy and Public PolicY

House Committee Approves $7.5 Million for ALSRP

Last month, the House Appropriations Committee approved legislation to provide an additional $7.5 million in continued funding for the ALS Research Program (ALSRP) at the Department of Defense. If enacted, it would bring total funding for the program to nearly $50 million.

The bill next heads to the House floor for a vote and the Senate also must act on its version of the legislation. We will keep you updated as the legislative process moves forward.

Research Updates

New Finding in ALS Strengthens Role of RNA in Disease

In work funded by The ALS Association through its support of Regina-Maria Kolaitis, Ph.D., a Milton Safenowitz Post-Doctoral Fellow, researchers have shown that an ALS-related protein is involved in clearing RNA-containing material that builds up in cells, including neurons. The finding suggests that loss of that clearance ability may contribute to the disease. The study was published in the journal Cell. Read full story.

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ALS Research Journal News, June 2013

Last month featured a provocative autopsy study of ALS staging that suggests that TDP-43 pathology spreads through the CNS in a predictable fashion. Studies of VCP link it to RNA-containing stress granules and to inclusions in multiple neurodegenerative diseases. Low magnesium intake is not associated with increased ALS risk, according to a study of over 1000 cases, and new therapeutic candidates include a vasospasm drug and adipose-derived stem cells.  Read more.

How You Can Help

Hidden Treasure Donating Savings Bonds to Fight ALS

bondsIt has been estimated that there are over 30 million expired savings bonds tucked away in file cabinets and safety deposit boxes all across America. They are not earning a nickel more for their owners. When savings bonds are redeemed, tax is owed on the income received. Presently, there is no way to avoid paying that tax, except by naming a charity such as The ALS Association to receive the bonds through a bequest in your will. Some of our friends choose to redeem their expired bonds and knowingly incur the tax that is owed. However, they then use the proceeds of the redemption to fund a Charitable Gift Annuity. The deduction allowed for creating the Charitable Gift Annuity helps offset the tax owed on the bond redemption. Their previously “overlooked” asset is turned into an income-producing one for the rest of their lives while also making a significant gift to the chapter to help fund compassionate care, advocacy and research in the fight against ALS.

Please contact our office for more information about donating your savings bond or making a legacy gift

 


Vision Express is a companion to The ALS Association's national publication, Vision Magazine.

The ALS Association
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Phone (202) 407-8580     www.alsa.org
 

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