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The ALS Association
Vision Express

 

 
 
  01. Letter from the President
  02. Advocacy & Public Policy
  03. Research Update
  04. How You Can Help

 

 
 
 

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Letter from the President

volunteerWith Father’s Day just around the corner, this is the perfect occasion to take another step toward a world without ALS.

Show your father or grandfather how special they are by creating a tribute fund today! Through the Community of Hope, you are invited to create a fund in honor or in memory of a loved one, while raising money and awareness for Lou Gehrig's Disease. Creating a tribute fund empowers you with your own website to share your story and increase awareness. Let family and friends know why the fight against ALS is important to you and encourage them to support your fund with a gift.

Donations collected through your personal fund will directly support The Association's care services programs which help local families struggling with the harsh realities of ALS. It will also support our global research efforts focused on finding a treatment and cure for Lou Gehrig's Disease.

So if you're looking for a meaningful and unique way to show your dad how much he means to you this Father's Day, consider creating a Community of Hope tribute fund today!

Sincerely,

9-28-10 Match Email 2 Signature

Jane H. Gilbert
President & CEO

Advocacy and Public PolicY

O.J. Brigance, Steve Gleason, Hill Meetings Among Highlights of 2013 Public Policy Conference

The ALS Association’s 2013 National ALS Advocacy Day and Public Policy Conference, held in Washington, DC May 8-11, brought together advocates from across the country and throughout the ALS community for the empowering three day event.  It was an event that included over 100 people with ALS, representatives of nearly every major ALS organization, as well as keynote speeches by two of the most well-known ALS Advocates: former NFL players O.J. Brigance and Steve Gleason who are living with ALS, but who are not letting ALS slow them down!

Click here for a full recap of this year's Advocacy Day activities. 

Research Updates

ALS Association-Supported Study Shows Combining Two Growth Factors May Have Advantage in ALS Treatment

A study published in the scientific journal Molecular Therapy, which was supported by the Wisconsin Chapter of The ALS Association and led by University of Wisconsin at Madison researchers, shows in ALS that two growth factors may be better than one. Read full story.

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ALS Research Journal News May 2013

Last month came the announcement of two new ALS susceptibility loci (chromosomal regions linked to the disease) in Chinese populations that are not found in Europeans. In addition, two new studies highlight potential biomarkers for the disease—spinal cord glutamate, which may be imaged directly, and an autoantibody against an inflammatory protein. New drug candidates in animal and cell models highlight some new pathways, and a clinical/genetic study of patients with multisystem proteinopathy highlight the links between that disease and ALS.  Read more.

How You Can Help

Employee Matching Gift Program

volunteerIf your company has an employee matching gift program, you could double the impact of your gift to The Association.

Check with your human resources or community relations department, and ask for the proper form to request that your company match your gift. Some companies match gifts made by retirees and/or spouses.

To find out if your company will match gifts to The ALS Association, please follow this link: http://www.matchinggifts.com/als/.

If your company is eligible, request a matching gift form from your employer, and send it completed and signed with your gift. We will do the rest. The impact of your gift to this organization may be doubled or possibly tripled!

Please contact our office for more information about estate planning or making a legacy gift.

 


Vision Express is a companion to The ALS Association's national publication, Vision Magazine.

The ALS Association
1275 K Street NW - Suite 250 - Washington, DC 20005
Phone (202) 407-8580     www.alsa.org
 

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