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The ALS Association
Vision Express
       
 
 
  01. Letter from the President
  02. Advocacy & Public Policy
  03. Research Update
  04. How You Can Help




Vision Express newsbites

Upcoming Webinars

May 20
Travel Tips for People with ALS
Click here for details.

May 21
Study of the NeuRx Diaphragm Pacing System in Participants with ALS
Click here to for more info.
Click here for details.




 

Letter from the President  

It's ALS Awareness Month! Tell Your Story.

Vision express AAM header imageDo you hope for a world without ALS? Do you hope another family doesn't have to go through what you've gone through? Do you hope your children don't have to fear this devastating disease? Please take a moment to Tell Your Story about ALS.

We hope that by sharing your experience with Lou Gehrig’s Disease, you will encourage others to get involved in the fight against this disease. Whether you have the disease or have had a friend or family member affected, your story will help show people they’re not alone.

By lending your voice to this campaign, we can work together in May and beyond to form a collective voice for change.

Once you’ve shared your story on the website you can share it even further via social media. The more sharing in May, the better! Thanks to our corporate partner, Pride Mobility, the four stories that receive the most number of social media shares could earn our chapter Quantum Q6 Edge chairs for our loan closets! These chairs will then be made available to people living with ALS at no cost.

So please take a moment to Tell Your Story. You can also view and share other stories of hope! Thank you for your support during ALS Awareness Month!

Sincerely,

9-28-10 Match Email 2 Signature

Jane H. Gilbert
President & CEO

PUBLIC POLICY

Advocacy Day is just around the corner!  Help us spread the news.

Whether you will be in Washington, DC to attend our annual Advocacy Day and Public Policy Conference or following the activity from home, you can help us spread the news.  Visit our website to download facebook cover photos, badges, info cards and more. Click here to grab a photo.

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Support a Veteran this Memorial Day

Every Memorial Day we take a moment to reflect on the bravery and courage of the men and women who have proudly fought for our nation.  The ALS Association would like to send our deepest appreciation to all those who have served our country in the armed forces.  We continue to support our military heroes, who are approximately twice as likely to develop ALS as the general public. Read more

RESEARCH

New Way to Track Disease-resistant Motor Neurons in ALS

A new technique for labeling motor neurons will allow researchers to study them in unprecedented detail. Because the technique identifies those motor neurons that are most resistant to the ALS disease process, it may help uncover clues about their resistance that can, in turn, point to new therapeutic approaches. Read more.

How You Can Help

Celebrating Mom This Mother’s Day

"We honor her not because she had ALS, but because she was much more to us," wrote Cheri Kopp, who chose to celebrate her Mom, by establishing an ALS Promise Fund. Every Promise Fund story is unique, but each captures the triumph of the human spirit.

Enjoy creating a personalized and enduring tribute to your mom this Mother's Day. Share her love, wisdom and all that she means to you and your family. Visit the ALS Promise Fund website to learn more.

 

     

Vision Express is a companion to The ALS Association's national publication, Vision Magazine.

The ALS Association
1275 K Street NW - Suite 250 - Washington, DC 20005
Phone (202) 407-8580     www.alsa.org
 

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