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The ALS Association
Vision Express

 

 
 
  01. Letter from the President
  02. Advocacy & Public Policy
  03. Research Update
  04. How You Can Help
 
 
 

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January 11
Safety and Tolerability Study of Mexiletine in Patients with Sporadic ALS
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Research Year in Review
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Communication Options for Persons Diagnosed with ALS and FTD
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Letter from the President

Every January, friends and family make New Year's resolutions in an effort to make a difference in their lives. Imagine making a resolution that not only benefits you, but also those courageously battling ALS. You can take the fight against Lou Gehrig's Disease to the next level by supporting The ALS Association even more in 2013.

We are incredibly grateful for everything you have done and continue to do for those living with ALS. Listed below are a few ways you can further your partnership even more with The Association in the New Year. Many of these suggestions you may already do, but some might be new for you.

Thank you for striving to make a world without ALS a reality. The thousands of people living with this disease may not know your name, but they certainly feel the impact of your commitment.

Sincerely,

9-28-10 Match Email 2 Signature

Jane H. Gilbert
President & CEO

Advocacy and Public Policy

Plans underway for Advocacy Day and Public Policy Conference!

Vision Ex Advocates on Hill

Save the date: May 8 - May 11, 2013.  More details can be found here.

Know anyone that's not an ALS advocate? Urge them to sign up today and help us find a treatment and a cure.

Sign up to be an ALS Advocate.

Research Update

News from the International Symposium on ALS/MND in Chicago

ALS MND SymposiumFrom Dec. 5 - 7, scientists from around the world gathered to focus on progress in hastening treatments and a cure for ALS at the 23rd Annual International Symposium on ALS/MND. The ALS Association is pleased to have been an official sponsor of this event. As the meeting concluded, Chief Scientist, Lucie Bruijn, Ph.D., provided an update on recent clinical trials involving people with ALS presented at the symposium. Read more.

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Biogen Announces It Will Discontinue Development of Dexpramipexole Based on Phase 3 Trial Results

According to the company’s website: “The trial did not meet its primary endpoint, a joint rank analysis of function and survival, and no efficacy was seen in the individual components of function or survival...." Click here to read article.

Browse more ALS Research news.  

How You Can Help

Keeping a New Year's Resolution

Here is a New Year’s resolution that you can feel good about keeping that will take care of you and your loved ones. At this time of year we all make resolutions which may be a challenge to keep despite all our good intentions. Take some time now to make sure you have these key documents in place and up to date, in case it becomes necessary for another person to act on your behalf or in the event of your death. Continue reading.

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Be A Hero in 2013, Get the 414 on ALS and Support the ALS/Lou Gehrig Disease Research Fund on your California Taxes!

ALS MND SymposiumThrough the dedicated work of passionate California ALS advocates, the support of Senators Steinberg and Vargas, and the approval of Governor Jerry Brown, Californians can support ALS research on their state taxes! Learn more about this extraordinary campaign in partnership with all of the California Chapters that brings the importance of funding ALS research to every taxpayer in California. This year, we must raise a minimum of $250,000, or it will be removed from the form. With more than 37 million people living in this state, a gift of $25 can make an incredible difference. We need your help to spread the word to Get the 414 on ALS!

Visit our campaign website, like us on Facebook, get updates on Twitter and watch for our public service announcements on You Tube!

Please remember to give on line 414 when you file your California State Tax Return and support The ALS/Lou Gehrig's Disease Research Fund. Download this reminder to save in your tax file!

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Vision Express is a companion to The ALS Association's national publication, Vision Magazine.

The ALS Association
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