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The ALS Association
Vision Express


  01. Letter from the President
  02. Care Services
  03. Research Update
  04. How You Can Help

Upcoming Webinars

September 11
Research Webinar on Resistance and Endurance Exercise in ALS
Click here to register

September 17
Targeting of monomer/misfolded SOD1 to Treat ALS
Click here for info

September 24
Assistive Technology Educational Series - Communication Options for Those Living with ALS
Click here to register

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One Dollar Difference
Fight ALS with your own event & raise funds for The ALS Association. Click here to find out how.


A Great Way to Support
those Living with ALS

CHC-connections-2012.jpgThe ALS Association is dedicated to the people living with ALS and their families. We know you are too. Although there are many ways to support the work we do, there is an incredibly quick and easy way to fight ALS every payday.

By giving through payroll deductions, you are taking your partnership with us to the next level. You can contribute to The ALS Association through Community Health Charities (CHC), a federation of premier health organizations that have joined together to raise charitable contributions in the workplace. Your gift will not only fund The Association's care services programs but also our global ALS research endeavors and public policy efforts.

To find out how you can participate in the CHC workplace giving program, please visit our website. Your gift, no matter how large or small, will have a profound impact on people living with this disease.


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Jane H. Gilbert
President & CEO


Ask the Doc: An Update on Stem Cells and ALS

Q: Given the excitement and promise being shown in stem cell research today, can you explain or summarize the current known types of stem cells that have been explored with ALS patients?

A: You ask an excellent and timely question. While there is indeed great potential in harnessing stem cells to solve problems in people with ALS, there is much work to be done before direct benefits will be possible. 

Click here to read the full answer from Edward Kasarskis, M.D., Ph.D., Director of the Multidisciplinary ALS Center at the University of Kentucky Neuroscience Center in Lexington, Kentucky; professor in the Department of Neurology at the University of Kentucky; and Chief of Neurology at the VA Medical Center in Lexington KY.

Research Update

The ALS Association Announces $4 Million in Global Research Grants

 The ALS Association’s latest research awards include funding commitments of $4 million to scientists in 31 laboratories in the United States, United Kingdom, Belgium, Germany and Canada. These awards are part of its Translational Research Advancing Therapies for ALS (TREAT ALS™) portfolio, a diverse portfolio of amyotrophic lateral sclerosis (ALS) research to find treatments and a cure for Lou Gehrig’s Disease.

Click here to view grants

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Scientists Discover Gene Appears to Influence
How Long People Live with ALS

According to a new study published on August 26 in Nature Medicine, scientists have discovered a gene that influences how long people live with ALS. The newly discovered gene, called Epha4, is used by the motor neurons to create a receptor for these guidance signals. In animal models of ALS, researchers found that preventing motor neurons from making this receptor, or blocking it using a drug, delayed the onset of disease and prolonged life.

Click here to read full article.

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The ALS Association Partners with MDA to Fund Clinical Trial to Test Efficacy of the NeuRx Diaphragm Pacing System (DPS)

The ALS Association and the Muscular Dystrophy Association have announced a joint commitment to provide funding for a phase 2 clinical trial that will test the efficacy of the NeuRx Diaphragm Pacing System (DPS) in people with amyotrophic lateral sclerosis (ALS). Among people with ALS, respiratory failure is the most common cause of death. The NeuRx Diaphragm Pacing System, developed by Synapse Biomedical in Oberlin, Ohio, requires minimally invasive laparoscopic surgery, in which electrodes are surgically implanted in the diaphragm

Click here to read the full article.

How You Can Help

Looking for Some Security? Income for You & A Gift to Fight ALS

Who isn’t looking for security these days? In these uncertain times, many of our supporters are looking for a stable source of retirement income. As a result, they are increasingly turning to Charitable Gift Annuities as a solution. Charitable Gift Annuities really are quite simple. You make a donation to The ALS Association (our minimum is $10,000), and we make fixed payments to you for the rest of your life - at attractive payment rates that are guaranteed.

If you desire . . .

  • A secure, fixed income for the rest of your life
  • Tax advantages and a charitable deduction for your gift
  • To provide for the financial security of a loved one family or friend
  • To make a donation, the remainder of which supports the fight against ALS

. . . a Charitable Gift Annuity may be right for you.

Please contact our office for more information or if we can be of assistance.



Vision Express is a companion to The ALS Association's national publication, Vision Magazine.

The ALS Association
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Phone (202) 407-8580

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