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The ALS Association
Vision Express

 

 
 
  01. Letter from the President
  02. Advocacy & Public Policy
  03. Research Update
  04. In the Community
  05. How You Can Help
 
 
 

Upcoming Webinars

April 16
Durable Medical Equipment
needs for People with ALS.
Click here for info

April 16
Imaging Biomarkers Research Studies, presented by NEALS
Click here for info

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Show Your Support This Month

We are pleased to announce that The ALS Association is participating in National Healthcare Decisions Day on April 16th. This gives us the opportunity to empower those living with ALS by increasing awareness of the importance of advance care planning. Advance directives are a critical issue for people fighting ALS and their families. We hope you join us in spreading awareness of this important issue on April 16th. To learn more, please visit the National Healthcare Decisions Day website for more information.

April also provides us with the opportunity to celebrate our invaluable volunteers during National Volunteer Recognition Month. Our extraordinary volunteers care deeply about our mission and dedicate their time to provide invaluable assistance in the office, help coordinate the Walk to Defeat ALS®, and advocate at The ALS Association's National Advocacy Day and Public Policy Conference. These are just a few of the many ways our volunteers strive to help create a world without ALS.

Thank you to each and every volunteer — the commitment you have made to those living with ALS is truly inspirational.

Click here if you're interested in joining our team of volunteers and taking your support of The ALS Association to the next level.

9-28-10 Match Email 2 Signature

Jane H. Gilbert
President & CEO

ADVOCACY AND PUBLIC POLICY

2012 Advocacy Day: Government ALS Research Session

People with ALS and their families have helped to generate more than $650 million in government funding for ALS research since The ALS Association established a Public Policy office in Washington, DC. In fact, today the federal government is the single largest source of ALS research funding in the world. By attending the 2012 National ALS Advocacy Day and Public Policy Conference, you can learn the latest on how government programs, such as the National ALS Registry and the ALS Research Program at the Department of Defense (DOD), are advancing the search for the cause, treatment and cure for ALS.

Read more >

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Last Call for Advocacy Day Registration

National ALS Advocacy Day logo

 

Register Today!
Early bird registration ends on April 13
.
Click here for online registration.

For additional information, please call
The ALS Association toll-free at
1-877-444-ALSA.

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Research Update

Stem Cell Study Aids Quest for ALS Therapies

An article published in the journal Proceedings of the National Academy of Sciences reports a breakthrough using cutting-edge stem cell research, which could speed up the discovery of new treatments for amyotrophic lateral sclerosis (ALS) also known as motor neuron disease (MND) outside the United States.

Read more >>

Fly Model of ALS Suggested That Nuclear Localization of
Mutant Protein Is Important for Toxicity

Researchers demonstrated that over-expression of normal (Fused in Sarcoma) FUS protein and FUS protein carrying ALS-linked mutations led to motor degeneration and damage at the neuromuscular junction in a fly model.

Read more >>

In the Community

Musician Eric Lowen Dies

Eric LowenOn March 23, singer/songwriter Eric Lowen died after a nine-year struggle with Lou Gehrig’s Disease.  Lowen teamed up with Dan Navarro in the 1980s and wrote “We Belong,” a song that was a hit for Pat Benatar in 1984.  Afterwards, they began performing and recording as  “Lowen and Navarro,” and in 2008 recorded the album “Learning to Fall” that was inspired by Lowen’s battle with ALS.

Read more >>

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How You Can Help

Leaving a Lasting Legacy - Fighting ALS with Your Bank CD

One of the simplest ways you can help The ALS Association in the fight against ALS is by making us the beneficiary of a certificate of deposit (CD) or any other bank account. A gift of a bank CD enables you to retain control over your assets, can be easily accomplished, it's flexible and, it will have a meaningful impact on our ability to fight Lou Gehrig's Disease. Your financial institution can assist you with this easy process. Be sure to let the chapter know if you have named us the beneficiary of a bank CD so we can welcome you into The Legacy Society, a special group of individuals who have made a commitment to supporting The Association through their estate or financial planning.

Please contact our office for more information or if we can be of assistance.

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California Residents - Don’t forget to give
on line 414 of your tax return.

414 logoSupporting ALS research has never been so easy.  On line 414 of your California tax form, you can donate to The ALS/Lou Gehrig’s Disease Research Fund and help The ALS Association in finding treatments and a cure for this deadly disease.  Even a small gift of $10 can collectively raise hundreds of thousands of dollars to support cutting-edge ALS research and offer hope to the thousands currently affected with Lou Gehrig’s Disease. 

414 formPlease watch the story of Todd Moreno and his aunt, and caregiver, Danielle Dunphy, who bravely volunteered to share with the world how ALS can strike anyone, at any time. Todd was 22 when he was diagnosed and passed away one week after filming at the young age of 25.  Danielle herself was recently interviewed by our friends and supporters at Comcast Newsmakers on what would have been Todd’s 26th birthday. 

Now more the ever, it is critical for you to share Todd and Danielle’s story with friends, family and colleagues, and ask them to share in your commitment to finding a cure.  You can forward this email, tell people to visit our website, like us on Facebook or follow us on Twitter. Every gift, however big or small, makes a huge difference in the fight against this brutal disease. With your help, ALS can be conquered. Be a hero at tax time and give $10 or more on line 414-ALS/Lou Gehrig’s Disease Research on your California tax form.

 


Vision Express is a companion to The ALS Association's national publication, Vision Magazine.

The ALS Association
1275 K Street NW - Suite 250 - Washington, DC 20005
Phone (202) 407-8580     www.alsa.org
 

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