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The ALS Association
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  01. Letter from the President
  02. Advocacy & Public Policy
  03. Research Update
  04. In the Media
  05. How You Can Help

Clinical Trial Updates

Latest news on the ALS research pipeline from NEALS. 
> View Updates


Upcoming Webinars

March 13
Stem Cell Rationale
Click here for info

March 14
Autophagy as a
therapeutic target for ALS
Click here for info

March 19
Electronic Aids for Daily Living Devices--help with reading, electronic devices, and calling for help.
Click here for info

March 20
Clinical Trial Design,
presented by NEALS
Click here for info

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Connect With Us!
Did you know The ALS Association is on many popular social networking sites? Join us! 







Reaching new milestones
through the Walk to Defeat ALS

We are excited to announce that the 2011 Walk to Defeat ALS® program was a tremendous success. Nationwide, 170 Walks collectively raised $20,300,000 for local care service programs and global ALS research endeavors. The ALS Association sends great thanks and appreciation to all walkers, sponsors, volunteers and generous donors. You made this new milestone possible!

We would also like to thank people with ALS, their family members and friends for continually motivating and inspiring the community as we work together to find a cure for and improve living with ALS. Your courage and support is paving the way for future achievements in the fight against Lou Gehrig’s Disease.

The 2012 Walk season is in full swing! Everyone and anyone can participate in fun-filled, inspiring Walk events to support local families living with ALS. Please join our largest nationwide fundraiser and help us reach our goal of $22 million dollars this year. With your support, we can give families the tools, equipment and resources they need to take control of their lives while also supporting global, cutting-edge research.

Visit our website often for information on upcoming Walks.

9-28-10 Match Email 2 Signature

Jane H. Gilbert
President & CEO

New Public Policy Priorities Introduced for 2012
  • Appropriate $10 million to continue the National ALS Registry at the Centers for Disease Control and Prevention. View details >>

  • Appropriate $10 million to continue the ALS Research Program (ALSRP) at the Department of Defense (DOD). View details >>

Help us affect a change.  Become an ALS Advocate!

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Registration is Open for 2012 Advocacy Day

National ALS Advocacy Day logo


Register Today!
Click here for online registration.

For additional information, please call
The ALS Association toll-free at


Research Update
Statement on Compassionate Use

In our quest to create a world without ALS, The ALS Association believes that people with ALS should have access to effective treatments as quickly as possible. Our primary core value is that people with ALS and their families come first in everything we do. When it comes to advancing therapies for ALS, we work with all stakeholders in an effort to find the best path forward.


In the Media
“Action ALS” Now Playing on the Big Screen

Action ALSDuring your Saturday night visit to the cinema, you may want to stay in your seat before the film trailers start.  That’s because The ALS Association’s new public service announcement, “Action ALS,” is airing at Cinemark theatres nationwide.  Select AMC, Regal and Rave cinemas are also showing the 30-second PSA that features stage and screen actor Jason Alexander

Since its release in mid-January, “Action ALS” has aired hundreds of times on television stations across the U.S.  Airline travelers in major markets also have the opportunity to see the PSA on the national network CNN Airport.  These markets include New York, Chicago, Philadelphia and Boston.

The PSA illuminates the impact ALS has on a person.  Arizona resident Steve Posso, who now uses a wheelchair for mobility, appears alongside Alexander.  Viewers see clips of Posso engage in a variety of activities, while Alexander discusses how the disease affects a person’s ability to eat, move, speak or breathe.


How You Can Help
Leaving a Lasting Legacy - Fighting ALS with Your Bank CD

One of the simplest ways you can help The ALS Association in the fight against ALS is by making us the beneficiary of a certificate of deposit (CD), or any other bank account. A gift of a bank CD enables you to retain control over your assets, can be easily accomplished, it's flexible and it will have a meaningful impact on our ability to fight Lou Gehrig's Disease. Your financial institution can assist you with this easy process. Be sure to let the chapter know if you have named us the beneficiary of a Bank CD so we can welcome you into The Legacy Society, a special group of individuals who have made a commitment to supporting our Chapter through their estate or financial planning

Please contact our office for more information or if we can be of assistance.

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Share Your Story

We have so much gratitude for all of our supporters who take a stand against ALS. Your commitment to The ALS Association has made it possible for us to provide compassionate care to the people and families living with Lou Gehrig’s Disease, in addition to funding global research to guide us to a treatment and cure for ALS. We are able to lead the fight against Lou Gehrig’s Disease because of YOU!

We hope that you will consider sharing your ALS story and increase awareness by creating an online fund in our Community of Hope. Whether a fund is created in tribute to someone dear or simply for a special occasion, the money raised will go directly towards the services provided by The ALS Association!

Upon becoming a Community of Hope Champion, you will be empowered with online tools to help spread the word about your fund and invite others to give support on your personal fund web page. Registering a Community of Hope fund will only take a few minutes and is sure to have a lasting impact on our mission. Together, we will put a stop to this terrible disease!

Join the Community of Hope


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California Residents - Don’t forget to give
on line 414 of your tax return.

414 logoSupporting ALS research has never been so easy.  On line 414 of your California tax form, you can donate to The ALS/Lou Gehrig’s Disease Research Fund and help The ALS Association in finding treatments and a cure for this deadly disease.  Even a small gift of $10 can collectively raise hundreds of thousands of dollars to support cutting-edge ALS research and offer hope to the thousands currently affected with Lou Gehrig’s Disease. 

414 formPlease watch the story of Todd Moreno and his aunt, and caregiver, Danielle Dunphy, who bravely volunteered to share with the world how ALS can strike anyone, at any time. Todd was 22 when he was diagnosed and passed away one week after filming at the young age of 25.  Danielle herself was recently interviewed by our friends and supporters at Comcast Newsmakers on what would have been Todd’s 26th birthday. 

Now more the ever, it is critical for you to share Todd and Danielle’s story with friends, family and colleagues, and ask them to share in your commitment to finding a cure.  You can forward this email, tell people to visit our website, like us on Facebook or follow us on Twitter. Every gift, however big or small, makes a huge difference in the fight against this brutal disease. With your help, ALS can be conquered. Be a hero at tax time, and give $10 or more on line 414-ALS/Lou Gehrig’s Disease Research on your California tax form.



The ALS Association
1275 K Street NW, Suite 250 - Washington, DC 20005
Phone (202) 407-8580

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