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The ALS Association
Vision Express

 

 
 
  01. Letter from the President
  02. Advocacy & Public Policy
  03. Research Update
  04. In Our Community
  05. How You Can Help
 
 
 
Will you be watching
the Super Bowl?

Pre-game show will highlight New Orleans Saint Steve Gleason, who is battling Lou Gehrig's Disease.
> Read story.


 
Upcoming Webinars
 
February 13
Supporting Advocacy Efforts
Click here for info
 
February 21
What You Should Know about
FTLD and ALS
Click here for info
 
February 27
Computer Access for
People with ALS
Click here for info

 

 
New PSA!
Have you seen our new ALS awareness public service announcement with stage & screen actor Jason Alexander? It is appearing on network and cable television.  You can view it now on our You Tube channel.
introducing vision express!


Welcome to our new e-newsletter, Vision Express, a companion to our semi-annual publication Vision.  Vision Express will provide the latest news in ALS research, clinical trials and public policy information in a concise format.  The newsletter will also highlight ALS awareness activities taking place across the country and exciting stories from the ALS community. 

If you enjoy receiving news from The ALS Association and wish to continue getting these updates, please take a moment to update or verify your contact information. We look forward to keeping all of you up-to-date with information about Lou Gehrig’s Disease throughout 2012 as we continue to aspire to achieve our vision of a world without ALS.

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Jane H. Gilbert
President & CEO

ADVOCACY AND PUBLIC POLICY
Advocacy Day 2012

National ALS Advocacy Day logoPlease join us for The ALS Association's 2012 ALS Advocacy Day and Public Policy Conference, Sunday May 13 - Tuesday May 15 at the JW Marriott Hotel.

Click here to view the brochure.

For additional information, please call The ALS Association toll-free at 1-877-444-ALSA.

rESEARCH uPDATE
Biomarkers Trial is Recruiting Participants

A Multicenter Study for the Discovery and Validation of Biomarkers in ALS is currently recruiting participants. The purpose of the research study is to collect blood samples and cerebrospinal fluid (CSF) from people with amyotrophic lateral sclerosis (ALS). Through comparison of these samples, the researchers hope to learn more about the underlying cause of ALS as well as find unique biological markers, which could be used to diagnose ALS more quickly and develop new therapies.

These blood samples are different from samples that are collected at your regular doctor’s office or clinic visit because they are sent to scientists who are researching the causes and disease course of ALS. Samples are also shared with ALS scientists around the country conducting research aimed at understanding the disease or identifying disease markers.

Click here to read the full article.


In Our Community
Texas Chapters Unite to Create
The ALS Association - Texas Chapter

Benefits include providing consistent services to constituents and garnering additional statewide sponsorships.

As of February 1, the three chapters across the Lone Star State have merged to become The ALS Association  - Texas Chapter.

The chapters, formerly known as the North Texas, Greater Houston and South Texas Chapters, consolidated to operate in a more efficient manner and to provide consistent services to people and their families battling Lou Gehrig’s Disease throughout the state.

“These changes will enhance care for the people we serve now and in the future,” said David Chayer, the new Executive Director of the Texas Chapter.  “We believe this re-organization will help us grow as an organization, and therefore, provide additional resources to Texans living with this debilitating disease.”

Chapter growth will also allow for other benefits, which includes attracting organizations that can support the chapter through sponsorships for the Walk to Defeat ALS® and other events.  Also, the merger will provide opportunities for corporate executives to serve on the chapter’s board and spread ALS awareness to their respective communities.

“Revenue from additional sponsorships will fund research and services for families living with ALS,” Chayer said.  “Our staff will continue to offer those with Lou Gehrig’s Disease the best care and support during this time of transition.”

Even with the restructuring, the chapter will maintain satellite offices in Austin, Houston and San Antonio and will keep its state office in the Dallas-Fort Worth area.  The state’s ALS clinics will remain at Baylor College of Medicine in Houston and The University of Texas Health Science Center at San Antonio.

“This is an exciting time for The ALS Association to expand its reach across Texas,” said Jane H. Gilbert, The Association’s President and CEO.  “Building more partnerships around the state will help get us one step closer to attaining our vision of a world without ALS.”

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The ALS Community Mourns the Passing of Dr. Richard Olney

heran sisay map button.jpgRichard K. Olney, M.D., the internationally respected ALS physician and researcher has passed away from the same disease he helped his patients fight. Olney inspired the entire ALS community as he continued to work on behalf of people with ALS until the very end of his life.

Olney was diagnosed with ALS in June 2004. He is survived by his wife, Paula; daughter Amy and son-in-law Ryan Dobbs; son Nicholas and daughter-in-law Caroline Olney, as well as his first grandchild, Richard Knox Olney, known as “Little Ricky” who was born on May 11, 2011.

Click here to read the full story.

How You Can Help
Hidden Assets - Fighting ALS with Your Bank CD

Vision planned givingOne of the simplest ways you can help The ALS Association in the fight against ALS is by making us the beneficiary of a certificate of deposit (CD) or any other bank account. A gift of a bank CD enables you to retain control over your assets, can be easily accomplished, is flexible, and will have a meaningful impact on our ability to fight Lou Gehrig’s Disease. Your financial institution can assist you with this easy process. Be sure to let us know if you have named us the beneficiary of a Bank CD so we can welcome you into The Legacy Society, a special group of individuals who have made a commitment to supporting The Association through their estate or financial planning. Please contact our office for more information or if we can be of assistance. Please contact David Moses at dmoses@alsa-national.org or (888) 949-2577 x212.

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Donate Gift Cards to Help Fight ALS

Donate My Gift CardWhat do you do with the small, unused balances sitting on gift cards?  We all have them - sitting in drawers, our wallets, the glove compartment. Donate My Card allows you donate those unused balances to The ALS Association. It's simple - visit Donate My Card, enter your card information, and input the amount you wish to donate. Even a small donation can make a big difference!


 

The ALS Association
1275 K Street NW - Suite 250 - Washington, DC 20005
Phone (202) 407-8580     www.alsa.org
 

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