Dear Friend,
Today is National ALS Advocacy Day! Hundreds of people living with
ALS and their loved ones are meeting with Members of Congress to share their
ALS stories, show the true nature of the disease, and make sure Congress knows
our fight against ALS is not over because of the success of the Ice Bucket
Challenge.
Did you know the United States government remains the single
largest source of funding for ALS research and health care in the world? Now is
the time to take advantage of the increased visibility brought on by the Ice
Bucket Challenge to secure continued federal support of ALS research and care.
Today, your participation is critical. You can make a difference with
just a click of a button. Tweet your Members of Congress today and urge them to
support progressive legislation that enhances the quality of life for people
with ALS.
The ALS
Association’s 2015 Public Policy Priorities:
-
Continue appropriations for
critical ALS research programs at the Centers for Disease Control and
Prevention and the Department of Defense
-
Enact the Dormant Therapies
Act
-
Ensure Access to Speech
Generating Devices: Enact the Steve Gleason Act
When you join our growing community of ALS advocates, you make a
direct impact in the lives of people living with ALS and bring us closer to
finding effective treatments for this terrible disease.
Together for a cure,
|
Calaneet Balas President and CEO The ALS Association
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P.S. – Follow @ALSPublicPolicy for live Tweeting from Advocacy Day
in Washington, D.C. TODAY!
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