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The ALS Association
Challenge ALS

National Office


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Dear Friend,


Today is National ALS Advocacy Day! Hundreds of people living with ALS and their loved ones are meeting with Members of Congress to share their ALS stories, show the true nature of the disease, and make sure Congress knows our fight against ALS is not over because of the success of the Ice Bucket Challenge.


Did you know the United States government remains the single largest source of funding for ALS research and health care in the world? Now is the time to take advantage of the increased visibility brought on by the Ice Bucket Challenge to secure continued federal support of ALS research and care.


Today, your participation is critical. You can make a difference with just a click of a button. Tweet your Members of Congress today and urge them to support progressive legislation that enhances the quality of life for people with ALS.

 

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The ALS Association’s 2015 Public Policy Priorities:

  • Continue appropriations for critical ALS research programs at the Centers for Disease Control and Prevention and the Department of Defense 

  • Enact the Dormant Therapies Act

  • Ensure Access to Speech Generating Devices: Enact the Steve Gleason Act


When you join our growing community of ALS advocates, you make a direct impact in the lives of people living with ALS and bring us closer to finding effective treatments for this terrible disease.


Together for a cure,


Calaneet Balas
President and CEO
The ALS Association


P.S. – Follow @ALSPublicPolicy for live Tweeting from Advocacy Day in Washington, D.C. TODAY!

 
 
 
 
 
 
 
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The ALS Association
1300 Wilson Blvd., Suite 600 - Arlington, VA 22209
Phone (202) 407-8580     www.alsa.org



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