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For the Week of June 2, 2015
The ALS Community Mourns the Passing of Former Board Member Stephen Saltzman
It is with a heavy heart that we share the sad news that Stephen H. Saltzman passed away peacefully in his sleep on May 25th. Stephen served faithfully on the Board of Trustees of The Association for over eleven years, and served as a member of the Chairman’s Council until his death.
National ALS Advocacy Day & Public Policy Conference Recap
A record number of people – 1,100 participants including 131 people living with the disease – joined forces for this year’s Public Policy Conference, holding more than 500 meetings with Members of Congress and their staff on National ALS Advocacy Day. Read more.
NEALS Webinar
ALS Clinical Trial Pipeline Series - Late Spring 2015
June 15, 2015 at 1 p.m., Eastern Time
Dr. Merit Cudkowicz will discuss the ALS clinical trial pipeline and answer questions about the current state of clinical research in ALS and motor neuron disease.
Register here.
Walk to Defeat ALS® Boot Camp…CONTINUED
Boot Camp is comprised of 12 virtual trainings that orient new staff to The ALS Association and the Walk to Defeat ALS® during an employee’s first 8 weeks. In addition to this orientation, there are a handful of topics that are critical for new Walk staff orientation to the Walk to Defeat ALS®. It is not crucial that these session are watched within the first 8 weeks, but within the first 6 months of hire. Read more and view the schedule here.
Walk to Defeat ALS® Seminars
After completing the Boot Camp Orientation Course Series, ongoing virtual seminars will occur with varying topics related to peer-to-peer fundraising. The seminars will include industry best practices as well as case studies from the chapter network. All calls will be hosted live and like Boot Camp will be recorded, provide steps for viewers to ‘prime themselves for success,’ as well as supplemental resources. Read more and view the schedule here.
Ice Bucket Challenge Toolkit Now Available
The toolkit for the ALS Ice Bucket Challenge 2015 is now available on the Insider. The toolkit contains graphic elements for both The Association and for the broader collaborative initiative. You are welcome to use any/all of the graphics provided when promoting/hosting ALS Ice Bucket Challenge activities in your community. Read more.
Emergency Preparedness for People with ALS
It is important that people with ALS and their family members make plans
to protect themselves in the event of a disaster. This needs to be
addressed not only at home, but also when away from home, such as at
work or on vacation. Read more.
May 29 Research Webinar Summary
The Neurocollaborative is one of the major initiatives begun with funds from the Ice Bucket Challenge. It brings together the unique strengths of three research groups to drive the development of high-impact therapeutic approaches to the treatment of ALS. Read more.
New Staff and Changes on NSE Team
On June 1, Katie Cooper
joined The ALS Association’s national office as Manager, Walk to Defeat
ALS reporting to Allison Lardner, Major Market Associate. Previously,
she was Regional Director of Development at the Florida Chapter. Katie
will work remotely from New York and can be reached at
kcooper@alsa-national.org or (518) 428-4293.
Katie replaces Tracy Earll who has been appointed Manager,
Endurance Events reporting directly to Taly Fantini, Director NSE.
Walk to Defeat ALS This Weekend
Good luck to the DC/MD/VA Chapter & the Greater Philadelphia Chapter with their walks this weekend!
June Chapter Walk Progress Report
Included on the report is chapter Walk fundraising for this year and last to compare your own and other chapter’s progress across the country! Keep up the great work! Here’s to a successful summer and beyond!
National Office Staff Openings
The National Office in Washington, D.C. has the following openings: Manager, Special Events; Director, Research Information; National Manager, Special Events; and an Executive Assistant. The following National Office opening is located in Tulsa, OK, or Oklahoma City, OK: Care Services Coordinator.
Florida Chapter Employment Opportunities
The Florida Chapter has several openings available, including: Chief of Care Services, Manager of Care Services Administration,
Event Logistics Coordinator, Regional Development Director, and a Regional Development Manager.
Email resume to: Lisa Bublinec at lbublinec@alsafl.org.
DC/MD/VA Chapter Hiring Director of Care Services
The chapter has an opening for a Director of Care Services.
Greater New York Chapter Opening
The Greater New York Chapter is seeking a Manager of Fundraising and Special Events.
Wanted: Regional Development Manager at Texas Chapter
The Texas Chapter is hiring a Regional Development Manager in its Austin Office.
Michigan Chapter Hiring
The Michigan Chapter is seeking a Director of Events.
Tennessee Chapter Seeking Director of Events
The chapter is hiring a Director of Events to work out of its Nashville office.
Global Resources for People Living with ALS
Looking for international resources to help people with ALS and their caregivers? Check out the website for the International Alliance of ALS/MND Associations. The Alliance has members from all over the world listed in its directory that provides services and support to people with ALS and their family members.
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