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Permobil and Quantum Rehab/Pride Mobility Seat Elevator/Lift Certificates Available

This year, both Permobil and Quantum Rehab/Pride Mobility are awarding a limited number of certificates for integrated seat elevators/lifts to people with ALS who are in financial need. Click Here to apply.



If you have any questions regarding this issue of Association Weekly, please contact Stephanie Dufner at or 831-869-1432.


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For the Week of November 4, 2014

Latest News

Ice Bucket Challenge Donations Enable The ALS Association to Triple Research Funding

The Board of Trustees has developed a long-term strategy for leveraging the Ice Bucket Challenge donations it has received to advance its integrated mission of leading the fight to treat and cure ALS through global research, care services and public policy.


October Walk to Defeat ALS Monthly Progress Report

Here is the Monthly Progress Report as of November 3, 2014. We are excited to share that the Walks to Defeat ALS have surpassed $30M!  Congratulations to everyone on this incredible achievement!  Keep up the great work!

Learning Opportunities

Weekly Luminate Training

2014 Year End Campaign Strategy
Thursday, November 6, 2014 at 1:15 p.m., Eastern Time
Session number: 829 151 856
Session password: Convio1
Login details here.

Research Webinar

Exome-Wide Rare Variant Analysis Identifies a Novel Gene Associated with Familial ALS
Wednesday, November 12, 2014 at 4 p.m., Eastern Time
Speaker: John Landers, Ph.D., Professor, University of Massachusetts Medical School
Session number: 828 320 802
Session password: Chicago1
Login details here.

Care Services Webinar

The Benefits of Professional Home Health Care
Monday, November 17, 2014 at 2 p.m., Eastern Time
Professionals from BAYADA Home Health Care will share the features and benefits home health care can provide to those diagnosed with ALS and their caregivers.
Session number: 824 443 052
Session password: ATCnov2014
Login details here.

NEALS Consortium Webinar

Mexiletine Study, Results Overview
Friday, November 21, 2014 at 3 p.m., Eastern Time
Speaker: Michael Weiss, M.D., University of Washington
Registration details here.


Stay Informed on the National ALS Registry

Do you want to learn more about the National ALS registry?  The Public Policy Department encourages all staff, especially Care Services staff, to sign up for the National ALS Registry Update   

News Story about Georgia ALS Family

Last week, a broadcast segment about a family in Georgia living with ALS appeared on Facebook and Twitter.

Weekend Walks

Good luck to everyone involved in our three Walks coming up this weekend!

National Office Hiring Vice President, Finance

The Association's National Office is seeking to hire a Vice President, Finance. The job will be based in the Washington, D.C. office.

National Office Seeks Director, National Events

The national Development team is hiring a Director, National Events. This position can be based in the Washington D.C. office or at other locations.

Indiana Chapter Hiring Care Services Coordinator

The chapter is looking to hire a full time Care Services Coordinator based out of the Indianapolis area or surrounding counties.

Event Coordinator and Care Services Director Wanted at Georgia Chapter

Do you know someone with two to three years of experience in fundraising, managing special events, such as walkathons or someone who minimum 5 years experience in health care or community service/relations setting and five years of management experience? They may be eligible for positions as Event Coordinator, Walk to Defeat ALS or Care Services Director at the Georgia Chapter.

Development Manager Opening at Rocky Mountain Chapter

There is a Development Manager position at the Rocky Mountain Chapter, located near Denver, Colorado.

St. Louis Regional Chapter Seeking Case Manager and Outreach Specialist

The chapter is looking to hire full-time Case Manager and Outreach Specialist to work with the Care Services team in the St. Louis, Mo. office. This position requires MSW, CRC or related medical discipline with licensure. Visit to complete the application and forward application and resume to Mary Riggs, Director of Chapter Programs and Operations.

Greater Sacramento Chapter Hiring Office Administrator

The Greater Sacramento Chapter is seeking a full-time Office Administrator, who will be responsible for assisting the Executive Director and staff in all aspects of chapter administration.

National Office Closure

In observance of the Veterans Day holiday, national offices in Washington, D.C., Calabasas and Chicago will be closed on Tuesday, November 11. The offices will re-open on Wednesday, November 12.

Association Weekly

Due to the Veterans Day holiday, Communications and Marketing will not distribute Association Weekly next Tuesday, November 11. Distribution will resume on November 18.

Action Needed!

2014 Year End Strategy

Our year end campaign is upon us! We will host a call to discuss end of year strategy on Thursday, November 6, at 1:15 p.m., Eastern Time. Please let Maegan Bracken know by November 20 if your chapter will not participate in this campaign.

Good News - Content Submission Reminder

At this time, Communications and Marketing is collecting blurbs for the November issue of Good News. Please submit your articles to Stephanie Dufner by November 17 before COB.

Association Weekly Subscriptions

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